(name has been changed by request)



When Patricia* noticed changes in her memory and began to have difficulty at work, she suspected that something was wrong. Because of her family history and her former profession as a nurse, she was not surprised when the neurologist diagnosed her with Alzheimer’s disease about a year ago. The disease is present in her family; both her father and her aunt were also diagnosed with Alzheimer’s disease.

Patricia rarely tells people about her diagnosis unless it’s relevant for them to know, such as a doctor or other medical professional. If she is having difficulty with a task, she may tell people that she has short-term memory problems. From past experience, she has found that when people learn that she has Alzheimer’s disease, their attitude changes. Often it makes people feel uncomfortable. “There are a lot of people who have the idea that Alzheimer’s is a crazy person’s disease.” Rather than risk being treated differently, she prefers to tell people who need to know and who are likely to be more understanding about the disease. Despite wanting to remain anonymous, she agreed to do this interview because she wants to share her experience with others.

About eight months ago, Patricia learned that the Alzheimer Society of B.C. offered Early Stage Support Groups for people with early symptoms of dementia. Since joining the Early Stage Support Group, she realizes the benefits of having a support system. “The support group makes you feel less alone, less isolated,” says Patricia.

In Patricia’s support group, people are comfortable with each other and find it easy to relate to others who are going through the same journey. “You feel like you’re with a group with similar issues and are at the same level of the disease.” In the support group, which meets twice a month, people talk about what they’ve been doing and share their thoughts about how the disease is affecting them.
Members also learn about the disease, share tips and strategies, and find out how to access additional community resources. “Sometimes we talk about general things. It’s sometimes better than only talking about the disease, but at the same time, you kind of have to because that’s the point of the support group.”

Asked if she had advice for other people faced with dementia Patricia says, “They need to go through the process. Go to your doctor, get access to support groups and other support systems that are available. Support groups can improve quality of life and allow you to be independent longer. It’s valuable to get into support groups. Trying to go through the disease by yourself is very difficult.”

Everyone’s journey with dementia is unique. We would like to hear from other people about their experiences, whether good or bad. Contact us if you would like to share your story.

E-mail us at info@alzheimerbc.org or by mail:
Alzheimer Society of B.C.
Attn: Insight
#300-828 West 8th Avenue
Vancouver, BC  V5Z 1E2